Sunday, December 13, 2020

The Impact of COVID-19 on People Ageing with an Intellectual Disability in Ireland

 


The Irish Longitudinal Study on Ageing (IDS-TILDA) has been studying ageing in people with intellectual disability (ID) for over a decade. Now in its fourth wave, a number of its research activities had to be paused due to the COVID-19 pandemic and associated lockdown. However, the IDS-TILDA team has taken the opportunity to study the impact of COVID-19 on participants in this longitudinal study. To mark the release of the report of the findings of this research, an online launch was held on 3rd December 2020, International Day of Disabled Persons.

Attendees were welcomed by Professor Mary McCarron, Principal Investigator of IDS-TILDA. Minister Anne Rabbitte, TD, Minister of State with Responsibility for Disability, gave a speech highlighting the context and main findings of the study, and praising the work of the IDS-TILDA team, those people with ID who have taken part in the study, and those who have supported them during this pandemic. Minister Rabbitte acknowledged that the pandemic and associated lockdown have been difficult for all of us, but it has often been even more challenging for people with ID, who can be more vulnerable, and often have less autonomy than the general population.

Professor McCarron then presented key findings from the COVID-19 survey. The COVID-19 survey had a response rate of 96% from the IDS-TILDA cohort, meaning this survey was representative of the population with ID in Ireland. A majority of participants were tested for COVID-19, with many being tested multiple times. Of those who did test positive or had symptoms, a clear majority had a plan in place to manage self-isolation. Key sources of stress and anxiety were being unable to do one’s usual activities, not seeing friends/family, loneliness and isolation. At the same time, many participants reported there had been some positive aspects to the lockdown, such as trying new activities or using technology to communicate with relatives and friends. Most importantly, there were no reported deaths due to COVID-19 in the IDS-TILDA population.

Following this summary of the results, broadcaster Olivia O’Leary led a panel discussion with a variety of stakeholders, exploring different perspectives on the pandemic and lockdown. Participants on the panel highlighting how best practice was implemented for people with ID in Ireland included Professor Sean Kennelly (Consultant Physician in Geriatric and Stroke Medicine, Tallaght University Hospital), Dr Alison Hartnett (Acting CEO, National Federation of Voluntary Service Providers), Dr Kathleen MacLellan (Assistant Secretary, Social Care Division, Department of Health), and Lisa Lavelle (Director of Nursing, Daughters of Charity Disability Support Service). From an international perspective, Professor Chris Hatton (Manchester Metropolitan University) praised the work of services in Ireland in protecting people with ID, and the research of IDS-TILDA, saying he hoped similar research (conducted at a more localised level) in the UK would be published soon. Professor Philip McCallion, Co-Investigator of IDS-TILDA, highlighted the heterogeneity of experiences across the United States, given the size of the country, but drew particular attention to the deep impact of COVID-19 in the North-East of the USA, where he works at Temple University, Pennsylvania. Mei Lin Yap, a PPI contributor and steering committee member with IDS-TILDA, spoke of her lived experience of the lockdown, and of the importance of social contacts during the lockdown.  

Following final comments from Professor McCarron, the launch closed with the original song “We’re in this together” by Sunbeam House Services. The song and its accompanying video, made by the service users, was a great way to finish the launch and underscore the importance of solidarity with each other at this time.    

You can download the report at this link.

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Researcher profile

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Tuesday, October 27, 2020

Writing workshop: "Novel Problems" with Niamh Campbell



I recently attended "Novel Problems" at the Irish Writers Centre The course was conducted entirely online, given the pandemic. The course is run by Niamh Campbell, whose debut novel This Happy has been getting very positive reviews. I had previously attended Fundamentals of Fiction, which combined a didactic aspect with workshopping of work, whereas Novel Problems focused more heavily on workshopping throughout. 

The quality of writing at Novel Problems was very high, and some of the participants were progressing quite well in the publishing game; one person in particular had already secured an agent, and their novel was in the process of being sent to publishing houses. Whereas the participants at Fundamentals worked in a mix of genres, the pieces workshopped on this course tended to be  more grounded in realism (in contrast, my current work combines the surreal, hyperreality and magic realism, so I felt like somewhat of a black sheep in this regard). During some of the discussions I realised that I would have benefitted from reading through the circulated extracts a few times; a lot of subtleties of people's work can go over one's head at a first read.

For the last week, we spent some time talking about an interesting article by Zadie Smith which led to much discussion around issues of identity, and authenticity in writing. I think this discussion was very pertinent for many of the writers in the group, whose work had a semi-autobiographical quality. My current work in progress is a totally fictional piece that is not based on anyone I know, but the article by Zadie Smith does make a fair point that the writer's personality will come through in their writing (regardless of how outlandish their story might be). 

This course is geared towards writers who have been working on a novel for some time, but I wouldn't write it off if you're starting on something, as long as you're passionate about it. If the course is running again, it's a great chance to get feedback from other motivated writers. 

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Monday, October 19, 2020

The distracted muse: generating new ideas when performing a separate task

 


There are many distractions on offer when one is undertaking a creative task. I write fiction, but do so on a laptop connected to the internet, and research into some aspect of life I want to include in a novel can quickly lead down a rabbit hole of interesting Wikipedia articles. 

A new paper in Creativity Research Journal looks at the possible effects of distraction on creative thinking. In contrast to the usual story of distraction spoiling the creative person's work, the idea presented here is that, by occupying attentional resources that could otherwise inhibit possible ideas, more creative ideas may emerge.  

The author assessed divergent thinking (generating different ideas/multiple possible solutions to a problem) using an Alternate Uses Task. Participants were provided with the names of everyday items and asked to come up with different ways of using them (so, if you see an iron, you could take the water out of it to water a plant, leave the iron out to make it look like you do more housework than you really do etc. etc.). Participants also had to complete a simple task which involved pressing coloured buttons in response to coloured boxes appearing on a screen. Sometimes (the dual-task condition) they had to complete the two tasks at the same time.

The results indicated that participants' scores on the alternate uses task increased in the dual task condition, compared to when they did the alternate uses task by itself. This was the case for originality (i.e. how unique the ideas were), fluency (i.e. how many ideas were produced), flexibility (i.e. how many broader categories of ideas were produced), and elaboration (i.e. how developed the ideas were). I would have expected originality to increase in the dual task condition, as unusual ideas become less inhibited, but was quite surprised to see overall fluency increase, given that the dual task might have made it more effort to produce a given number of ideas.

There is a history of different explanations offered as to why one can come up with better ideas while working on a different task to the creative endeavour. One possible explanation is opportunistic assimilation, where an idea from a different field can influence another project where you're stuck for ideas. However, I don't think such assimilation could be demonstrated in a short-term study of this nature, where the rather basic dual task would be unlikely to provoke many ideas.       

 This research looked at divergent thinking over a short period of time. Collins himself notes that divergent thinking is not equivalent to creativity.  Longer creative works will often take longer periods of focused concentration. Doing a line edit on a novel is probably best done without distractions (so unplug your internet!). The experimental scenario was set up in such a way that the participant would be encouraged to keep working at the creative task at the same time as the distracting dual task (rather than just disappearing down the Bermuda triangle of Wikipedia and leaving the Word doc with the novel closed). Nonetheless, this article suggests that giving your full and undivided attention to a task when generating new ideas might not be all it's cracked up to be.

Collins, M. J. D. A. (2020). A Distracted Muse: The Positive Effect of Dual-Task Distraction on Creative Potential. Creativity Research Journal, doi: 10.1080/10400419.2020.1816066. 

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Monday, September 28, 2020

Memory clinic for people with intellectual disability

 


It was great to see Trinity College Dublin's news page cover a recent webinar from the National Intellectual Disability Memory Service at Tallaght Hospital. In addition to Professors Mary McCarron and Seán Kennelly, who established the service, the webinar had the special guest speaker Dr Juan Fortea, who spoke of some of the intersectional aspects of health inequities for people ID, as well as highlighting his work with the Down Alzheimer Barcelona Neuroimaging Initiative and international consortia. He mentioned that there appears to be more funding for research on this topic in the United States, although the incidence of Down Syndrome is higher in Europe. He also spoke about the value of research in enhancing quality of life for people with Down Syndrome, and highlighted that barriers to participation in research could well be considered a form of discrimination against people with Down Syndrome.    

The National Intellectual Disability Memory Service will work in assessment, diagnosis, post-diagnostic support, and research. Assessing any patient for dementia is complicated, but this is particularly true in the context of intellectual disability, where physicians cannot assume a typical baseline level of cognitive performance or independence in daily living. The onset of dementia is younger on average in people with ID, so the potential to capture baseline cognitive performance and independence at a younger age (e.g. mid-thirties) will allow for a clearer picture of any decline. Professor Seán Kennelly highlighted the importance of appropriate disclosure of diagnosis, as well as how post-diagnostic support should take into account lifestyle factors such as sleep and physical activity.   

The National Intellectual Disability Memory Service aims to develop satellite clinics across Ireland, so patients from around the country will not necessarily have to travel to Tallaght in Dublin for assessment. Professor Mary McCarron also underlined the value of telemedicine in helping to address equity of access, particularly in this time of the COVID-19 pandemic. A recent guide to memory clinics highlighted that there were no memory clinics for the general population in the Northwest of Ireland, despite this region having the highest prevalence of dementia, and to the best of my knowledge there is no national memory clinic for the general population. Notwithstanding that general memory clinics will see a higher number of patients, the NIDMS is clearly setting a very high standard in this arena.

The webinar is available at the NIMDS webpage: https://www.tcd.ie/tcaid/research/NIDMS.php 

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Thursday, September 17, 2020

Irish Research Staff Association: meeting with Minister Simon Harris



I recently became Chair of the Irish Research Staff Association (IrishRSA), which represents research staff across the island of Ireland. My colleague Dr Rosarii Griffin and I had the chance to meet with Minister Simon Harris and his team at the Department of Further & Higher Education, Research, Innovation & Science.

The meeting was very constructive, covering various topics affecting Irish research staff, with the precarity of researcher careers being a key issue underpinning the discussion. We discussed  researcher representation on decision making bodies, and the need for researchers to be consulted on the content of the national Researcher Career Framework.

Another key point was the importance of collating reliable data on researcher numbers & career trajectories, which is required to inform policy with regard to research careers.

We also discussed future research policy, Horizon Europe, impacts of Brexit, UNESCO commitments and full-cost extensions to projects interrupted by COVID-19. We look forward to continued consultation with the Minister on these topics and to supporting the Irish HEI research performing sector.

The IrishRSA consists of members from TCD, UCC, UCD, NUIG, MU and RCSI but actively welcomes research staff from all HEIs across the island of Ireland to contact us and join the association (irishrsa@gmail.com).

Many thanks to Minister’s office for the photograph. Left to right: Dr Rosarii Griffin (UCC, Treasurer of Irish RSA), Minister Simon Harris (Minister for Further and Higher Education, Research, Innovation and Science), Dr Andrew P. Allen (TCD, Chair of Irish RSA)

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Friday, August 28, 2020

Recent letter to "The Psychologist": Psychology as science/psychology and social justice

A recent letter to The Psychologist magazine has attracted considerable controversy, with editor Dr Jon Sutton adding a note below the letter itself, regarding his decision on whether or not to publish it. The author (Dr Kirsty Miller) outlines the reasoning behind her decision to leave the British Psychological Society. (By the by, I let my own membership of the BPS lapse, but only because I moved back to Ireland rather than as an objection to anything). Although the letter is addressed to this British society specifically, the letter touches on a number of broad and timely/timeless issues within psychology. One value of the BPS in its code of ethics is that psychologists should "stay in their lane" or exercise caution in making knowledge claims, so I should say I'm not an expert on the specifics of much of what's discussed in this response, these are just my thoughts/opinions. I quote from the letter in bold italics below, with my thoughts in plain text.



In recent years I’ve become increasingly aware of the politicisation of the British Psychological Society, a shift that I feel is inappropriate for what is ultimately a governing body. When an organisation releases value statements (for example, after the recent BLM furore), it is speaking on behalf of members, and telling us what we should believe. There is no acknowledgement that some members do not subscribe to similar world-views, and it is certainly inconsistent with the BPS’s own statements regarding diversity within the organisation. 

Organisations may make statements on behalf of members. Of course, these can't necessarily represent the views of all members (a task like herding cats). In my mind, it would be somewhat prosaic to preface a statement with the caveat that it doesn't align exactly with every individual member's views, or that individual members are free to disagree with some of the world-views expressed. At the same time, this paragraph does implicitly touch on the point that Western psychology does have a tendency towards a more left/liberal worldview that the general population. One survey of 800 psychologists found that only 6% of respondents described themselves as Conservative overall, though there was a certain degree of viewpoint diversity on economic issues and foreign policy. 

However, the statement on racial injustice is a poor example to suggest that the BPS has a liberal bias; the underlying message of anti-racism should hardly alienate people across (most of) the political spectrum (I hope). While the statement focuses on racism and anti-racism, the statement more broadly promotes values of inclusion that could be extended to differing political views. However, where such political views themselves become discriminatory, this will frustrate the goal of being inclusive. Furthermore, the BPS can hardly be truly inclusive if it does not at least try to grapple with the fact that different people may find it harder to get into a career in psychology in the first place.

As the cited statement from the BPS with regard to racial injustice and inclusion notes, "The BPS does not exist in a vacuum", and as noted in the about us section of their webpage, the BPS promotes "excellence and ethical practice in the science, education and application of the discipline" (my italics added). 

A further issue is it that the majority, if not all, of these statements are promoting a social justice agenda: an ideology that is ill-defined, subjective, and often far removed from reason or evidence. The concepts tend to be based on the notion that the way to address the historical suffering of certain groups is to give them preferential treatment in the here and now. This is presented as ‘justice’, however many would disagree that there is anything just or fair about giving preferential treatment to some and punishing others on the basis of immutable characteristics. 

However, one of the biggest problems with the BPS subscribing to social justice principles, is that to do so, one largely has to abandon science and facts. This is a particular issue as the BPS is still trying to claim that psychology is in fact, a science. Furthermore, if we were to behave like scientists (i.e. using evidence to support our beliefs, and self-correcting in the face of conflicting evidence), we should have abandoned many of psychology’s pet outputs (such as microaggressions, implicit bias, inaccuracy of stereotypes, the notion that disparity equals discrimination etc.) a long time ago. However, despite evidence challenging these (and similar) notions, they are still presented uncritically and promoted by members, as well as the organisation as a whole. 

I think psychology could be better described as an empirical endeavour rather than just a science. Scientific methods contribute enormously to psychology (e.g. double-blinding, in experiments as well as in peer review, although double-blinding can be difficult to practice in studying talking therapy compared to an active pill versus placebo). At the same time, qualitative research methods used in psychology, while empirical, do not necessarily employ the scientific method, and qualitative researchers have generally pointed to the importance of reflexivity (i.e. acknowledging the role of researchers' subjective appraisal in their empirical work). I think that reflexivity is important across the board in psychological work, not just in employing qualitative methods. 

With regard to dropping ideas with weak empirical support, it is true that, once an idea takes hold, it can indeed be "sticky" in terms of self-correcting if emerging evidence suggests that it was on weak foundations to begin with. However, as Dr Miller points out, research has been done that challenges any perceived social justice "consensus", and besides the research cited here, I would also add that a lot of implicit bias training has come in for some stinging criticism from people with rather diverse political viewpoints. 

Nonetheless, this does touch on an important point. Although psychological research may inform political debates, if political/ethical statements are presented as if they were scientific facts, this can have the negative effect of undermining public trust in science if such value statements are later found to be based on weak evidence. Conversely, do we really need an evidence base to say "racism is bad"? The idea that society needs a better evidence base for racism being a social ill could lead to inertia in addressing racism.    

Finally, and perhaps most concerningly, following a social justice agenda prevents us from achieving the goals that as psychologists, we should be striving towards. First, it actually promotes mental illness – encouraging individuals to look for, and hold on to slights, read in to others’ intentions, and assume the worst from others’ behaviour (all patterns of thinking that CBT practitioners warn against).

Having dismissed social justice as ill-defined, Dr Miller nonetheless opines that it is corrosive to the aims of psychology. This point here appears to make a mistake that is mentioned in an article that she cites earlier in her letter (i.e. conflating social justice with victimhood culture). A lot of thinking that I'm hearing within social justice tends to downplay inter-individual interaction compared to broader systemic issues, and so shouldn't necessarily lead individuals to ruminate on the possible intentions behind another individual's behaviour or obsess over perceived slights. In contrast, there are various mechanisms through which pursuing social justice could be beneficial to mental health. Getting involved in a political organisation that challenges racism, for example, may help someone to overcome feelings of helplessness or alienation (although this research does suggest caution about assuming this will necessarily be the case for everyone).

Second, it prevents education, with professors (particularly those who are categorised as white and/or male) being increasingly unable to respond to, contradict, or ultimately educate those from other demographic groups. 

The article cited here seems an odd choice, referring to an incident on Twitter rather than a classroom (although a number of professors were involved). A lot has been written on this topic, we could talk about anecdotes about someone being fired over a faux pas, but it's beyond the scope of the letter (or this post) to deal with it in depth. It is wrong if academics in psychology (or any other subject area) are disciplined simply on an ad hominem basis. White and/or male and/or cishet etc. etc. professors may feel more defensive in the lecture hall. Applicants who wish to undertake a doctoral in clinical psychology may feel up against it given that they're from an ethnic minority. Nonetheless, I don't think we should be too pessimistic about the possibility of being anti-racist, anti-sexist etc. while still being able to run courses in psychology. As I mentioned in my post on academic freedom, politics and economics it is possible to have academic freedom without having to put up with prejudice towards students/staff.

Finally, the teachings create damaging divisions between groups. As a student, I began a ‘minorities and majorities class’ treating all human beings equally regardless of their demographics, and left it feeling obliged to avoid all interactions with minority groups lest I offend someone – one of the many known problems associated with such programs.

The paper cited mentions potential pitfalls with cultural awareness training (and, implicitly, cross-cultural encounters). These include placing cultural difference at the centre of interactions, and the associated issue of creating/heightening a sense of in-/out-group. Addressing these pitfalls shouldn't necessarily be contrary to efforts at social justice (for example, acknowledging a person's individuality would avoid placing culture at the very centre of the interaction, and could correct the social injustice of seeing members of a given group as "all the same"). The fact that teachings require reform doesn't refute the value of having cross-cultural awareness.

Should the BPS re-evaluate their values and decide to do their job of governing the organisation from an impartial and scientific standpoint, I would gladly pay my membership fees and re-join. Until then, I fear I shall continue to watch the downfall of our discipline – one that is due in large part to the complicity of those who were tasked with protecting it.

The BPS could go in the direction of being more exclusively science-focused, commenting less on the ethical and the political. If it were to do so, no doubt it would gain some members and lose others. However, I think it's alarmist to suggest that the discipline of psychology will suffer some "downfall" as a result of engaging on political or ethical issues (which it has been doing for quite some time). 

The letter as a whole has a sense of having one's cake and eating it, calling for greater objectivity/harder science/evidence-based practice while also making some broad assertions that call for more evidence, such as the idea that a social justice agenda promotes mental illness. This may be coming from a place of wishing to offer a corrective for a left/liberal tendency within psychology, but ultimately the letter vacillates in playing by its own rules. Ultimately, although politics and values will be more/less salient in different sub-disciplines, human psychology isn't really separable from the political or ethical, and I think the BPS overall is "within its lane" in supporting research while also being cognisant of the broader sociocultural context (including the historical context) in which this is happening, and, who knows, maybe even applying psychology to help create a fairer society for the benefit of people's mental health. What's so bad about that?

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Monday, August 10, 2020

Restaurant review: One Pico



One Pico is tucked away in an assuming lane of Molesworth Street. I previously had dinner here during a UCD conference on medical humanities. I was perhaps a bit lost in conversation with collaborators to really focus on the food.

When it comes to social distancing, I was previously at another, unnamed restaurant that had us at what seemed like rather close quarters with other patrons (albeit separated by screens). Here though, the tables are suitably distanced from each other. There's a pleasant ambiance, with lively jazz at low volume and friendly waiting staff.

For starter, I had pea velouté-earthy flavour, with dried peas adding nice textural contrast. There was also a Coolea cheese gougere, that seemed to be calling to be eaten in one mouthful, though I spaced it out to two. My wife had seared scallops in a crab bisque-major hit of sea and umami. It had a perhaps unnecessary addition of summer truffle on top - while adding a dash of prestige, this didn't quite integrate with the dish as well as it might. Nonetheless, it didn't impair what was otherwise an excellent dish.

For mains, I had gnocchi-this is in done a lot in veggie fare, although variations on sweetcorn were the real star here, appearing as both seared corn, deep fried in a pastry shell and flavouring a rich sauce. Perhaps it's already making a comeback of which I was unaware, but it's nice to see a vegetable that isn't super hip getting a chance to shine. My wife had turbot, which was decorated with caviar and accompanied by a scene-stealing courgette flower stuffed with langoustine mousse. 

For dessert, my wife had a lemon verbena bavarois with strawberries, elderflower and sorrel ice cream-a beautifully balanced and delicate dessert. I had a chocolate délice with black cherry and cherry ice cream. A classic pairing for anyone who can recall black forest as a childhood treat, this dessert was also well balanced, even though the chocolate was of a richness approaching that of "La bombe" in "Guess who's coming to criticise dinner" territory (as well it should!) Coffee was accompanied by a salted caramel truffle and a white chocolate with a gooey strawberry filling.

We got a bottle of archetypal Soave with a nice citrus feel to accompany dinner. We took most of it home and enjoyed with a leek risotto the following evening. I managed to resist the temptation of the dessert wines. I can definitely recommend if you want to go somewhere nice for an occasion.

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